Busy few weeks ahead.

Tomorrow (Tuesday) Parker and I will head to Cincinnati for a sleep study. I’m sure it will be loads of fun because I can’t imagine there is a two year old out there who doesn’t want to be slathered with electrodes measuring who knows what while they sleep. I promise to post some pictures.

While we are there we hope to meet up with our trach friend Nathan. Nathan is three and will have having a reconstruction surgery done on Wednesday. Please keep he and his family in your thoughts and prayers over the next few weeks. Everyone hopes that Nathan will go home without his trach but his airway is considerably more complicated than Parkers. He was born without vocal cords and with an essentially closed airway. He was trached at 2 hours old and it was by sheer will power that he survived those first few hours.

Next week Parker will have an MRI on his spine. He has a sacral dimple. We like to refer to it as his little crooked bum crack but . . . cute as it is it can be a symptom of a tethered spinal cord among other things. We have very little reason to believe that Parker has a tethered spinal cord but at this point we are just checking out everything to make sure. He’s been full of suprises before so why stop now?

The following week is his hernia repair. We will be back in Cincinnati for that one. It’s spring break for the big boys so we will stay the weekend at Grandma and Grandpa Bug’s in Indiana and do the day surgery in Cincinnati from there. Some of you may be wondering why we are going to Cincinnati for this surgery. It is, after all, a relatively common surgery. The answer is that at this point we are still very concerned about any procedure that requires an intubation. We’ve heard stories of cavalier anesthesiologists using an ET (endotracheal) tube that is too big for a reconstructed airway. This is problematic, sometimes very problematic. We aren’t ready to take any chances.  I’m not sure we will ever be ready to take any chances, truth be known. He’s our baby. So for now, we will pursue all surgeries in Cincinnati with the complex airway anesthesia team at the ready.

Probably sometime after the hernia repair we will learn the results of the sleep study. We may be in for more surgery, we may be in for some watching and waiting. I’m not sure how quickly we will get the MRI results. I’m cautiously optimistic that there is nothing there to worry about. But, hey, if there is an issue, what’s one more surgery? It’s funny. Surgery is never something to be taken lightly. We are all too aware of the risks that anesthesia brings. But, somehow it does get easier. I won’t soon forget that first time we wheeled our tiny baby to the OR for his first broncoscopy it was a truly nervewracking hour before Dr. James came back out to talk to us.

Happy Spring, by the way!

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3 Responses to “Busy few weeks ahead.”


  1. 1 Cavelle March 26, 2009 at 3:50 pm

    I’ll be thinking of you 🙂

    Cavelle

  2. 2 thai checel March 26, 2009 at 6:35 pm

    Thanks for the update – we’ll be thinking of you. Lucky you have such great parents, Parker!!

  3. 3 Darlene March 26, 2009 at 6:38 pm

    Suzanne we admire your strength. You are truly amazing. All the best Parker!!


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