Back from the OR.

Parker did it again. He’s officially piqued the interest of the entire department. We had a lot more than usual participants in the after-scope conversation.

The good news is that the graft site looks great. It has started to grow mucosa which means it is integrating nicely into Parker’s airway. There was a little swelling but nothing remarkable.

The bad news is that we don’t have any concrete answers about why Parker had this episode. There is some renewed interest in the vocal cords and whether or not they are working intermittantly. This would be highly unusual but not unheard of.

For now the plan is to extubate in the morning and see how it goes. Because the graft site is stronger this time around the PICU doctors will have the freedom to try some things that they couldn’t do last time. They can use positive pressure to help push the airway open if he has a bigger episode. Doing this effectively buys us time to get past the episode and avoid reintubation. Of course, if the episodes keep happening than something else needs to happen but the hope is that they won’t. If they do, the plan is to get ENT to do a stat scope bedside during an episode to see exactly what the cords are doing.

Wish us luck tomorrow! We hope the withdrawal is less and the wake-up is speedier since this time around he’s only been sedated for 72 hours.

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11 Responses to “Back from the OR.”


  1. 1 Jill April 21, 2008 at 10:34 pm

    Sounds like good news! I’ll be thinking of you tomorrow and hoping for a smooth wake up! Hang in there!

  2. 2 Sheryl April 21, 2008 at 11:06 pm

    I was waiting in suspense! I was worried actually. I’ll be waiting again tomorrow in hopes everything goes smoothly…….

  3. 3 deb April 21, 2008 at 11:22 pm

    I have been checking your site all day, sounds like they have a good plan to either move on to recovery or figure out what the deal is if it happens again. I will keep sending good thoughts your way! As for the Double Chocolate Chip cookies, it is probably another plot to drive parents crazy, you know, with the beeping monitors, vitals at all hours of the night, people calling you mom, always seeming to miss when the “good” food is available in the cafeteria etc. That is just wrong though, don’t they know they could push us over the edge some day???? Hang in there and know there are many of us pulling for you guys to get out of there healthy and soon!

    Amanda’s mom, deb.

  4. 4 Nicole April 21, 2008 at 11:31 pm

    Sounds like they have a good plan in place. Hope everything goes smoothly tomorrow. We too will be waiting in suspense. Our thoughts and prayers are with you.
    Nicole

  5. 5 Ang B (faywrayy) April 22, 2008 at 12:25 am

    I’ve been checking all day, so yes I was waiting in suspense! Thinking good thoughts and lots of positive energy for he extubation tomorrow!

  6. 6 Kristy (LKN) April 22, 2008 at 1:40 am

    Oh my goodness! What a couple of days you all have had. Things sound good. We’ll keep our fingers and toes crossed that tomorrow goes off without a hitch.

  7. 7 Happy April 22, 2008 at 1:52 am

    I’ve been checking all day yesterday and today and I called my mom to see if my computer just was messing up, so I’m sooo glad to hear news. You are really amazing. We’ll hope and pray that tomorrow goes really well!

  8. 8 thai checel April 22, 2008 at 3:09 am

    good luck tomorrow!!!!!!!!
    we are all rooting for you and parker. enjoy the attention while you have it – soon he’ll be a normal nose and mouth breathing kid… with really red hair.

  9. 9 Alana McClure April 22, 2008 at 3:39 am

    GOOD LUCK TOMORROW!!

  10. 10 Lara (IsaacsMom) April 22, 2008 at 11:44 am

    Good luck Parker!!

    Suzanne, and Ian, I hope you are hanging in there okay.

    Lara

  11. 11 Jack & Mark April 22, 2008 at 1:01 pm

    Thanks for the update, please know we are thinking about you guys…hang in there!


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