Things are moving slowly . . .

Good morning. Parker had an OK night. A few more breath holding incidents. He still hasn’t really woken up. He is more alert at times than he was yesterday. He holds your hand and he responded positively to my singing to him this morning (no laughing from those of you who have actually heard me sing!). When he is awake he is disoriented and clearly in discomfort. Last night we decided to add morphine to his meds just to take the edge off of his discomfort. I say discomfort because I don’t think it is all pain. I’m sure there is some pain, especially in the rib area but I truly think it is discomfort.

Because of the breath holding they are reluctant to wean him aggressively from his supplemental oxygen. Because he’s still on so much oxygen they aren’t letting him eat which I’m sure adds to his overall discomfort. It is really a double edged sword, but we are managing as best as we can.

The other thing at play that has surprised us is how slowly he is waking up. He was running through the sedation meds like they were candy, so we assumed that he would be much more awake by this time. It seems though that some kids absorb lots of sedation into their tissue and now that he isn’t on those meds any more, those that were absorbed are coming back out into his bloodstream and still need to work out of his system. Of course, this only happens to some kids!¬† Story of our lives.

The big thing we are hoping for today is to keep inching back on the oxygen so that we can hopefully let him have something to drink and eat which I’m sure will help turn things around.

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6 Responses to “Things are moving slowly . . .”


  1. 1 Cathlin April 17, 2008 at 2:40 pm

    At least there is some progress – which is always a postive sign. Always thinking about you, Ian, and Parker…

  2. 2 Kristy (LKN) April 17, 2008 at 2:51 pm

    I’m glad he is doing better–slow and steady is just fine. You must be exhausted. I hope you can find some time to get a little rest. Hang in there!

  3. 3 Nicole April 17, 2008 at 8:28 pm

    I am sorry it is not moving as you expected. I hope things are going better by now. Parker is a strong little guy and will get through this. You and Ian need to remember to get your rest. We are thinking about you and are looking forward to seeing you next week.

  4. 4 Lara (Isaacs Mom) April 17, 2008 at 9:23 pm

    Well, slow and steady is still steady.

    Parker, Isaac says he hopes you get to eat soon! He knows he gets cranky when he is hungry.

    Lara

  5. 5 Jill April 17, 2008 at 9:45 pm

    Sorry I missed you today. Try me back if you get some free time (haha, yeah right!! I’m sure you barely leave the room!) We are always thinking of you and hope for a good report tonight!

  6. 6 Margie April 18, 2008 at 1:48 am

    Yeah for the SMILE!!! Hang in there Parker… BIG BIG Hugs and lost of Prayers!!

    Glad you are swapping out nappies and nights sleep.. YOU need to take care of you!! M


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