On the eve of surgery . . .

Here we are, ready for surgery . . . after . . .

65 nights in the hospital

3 ambulance rides

7 trips to the operating room

11 overnight home care nurses

95 trach changes

Two road trips to Cincinnati Children’s

Lots and lots of trips to the pediatrician


Countless hours on www.tracheostomy.com learning and making new friends.

My mom arrived this morning. Ian, Parker and I fly to Cincinnati tomorrow afternoon. Then at12:15 p.m. on Thursday, Parker will head into the OR. While we are there we hope to see Ainsley, Tommy, and Colin. Ainsley is in town with her mom to get a full work up by Dr. Cotton and the rest of the team. You can see her blog here: http://ainsleyrae.blogspot.com/. Colin had an LTP last week and is officially a face breather! We can’t wait to meet he and his family. They are in Cincinnati from Texas. His blog is here: www.gradyfamilytexas.blogspot.com. You know Tommy from a previous post. He’s back in Cincinnati for follow up from his surgery and so far, things look great! We hope to meet his family while we are there too. You can follow Tommy’s care page from www.carepages.com (babyboyce).

I will be updating the blog throughout the day on Thursday so if you are like me and are an obsessive, need to know kind of person, please feel free to check in as often as you would like. Otherwise you will receive your usual update early in the morning on Friday. Please keep us in your thoughts as we travel. Please keep our friends in your thoughts as well as they are all in slightly different stages of their journeys. Honestly, these families are an important part of our extended family, even though we’ve never met them.

There are two other families who have really touched our lives during this time too, that need your thoughts and prayers.

Keturah is three years old. She is trached and must be on a ventilator at night because her body forgets to breathe while she is asleep. Recently, she’s been bleeding from her trach and her lungs are very damaged. After a stay at the PICU at Children’s Hospital of Orange County last week, they believe they have things under control, but if not, she may have to have a portion of her lung removed. Keturah’s daddy, Chris, was recently diagnosed with lymphoma. He has just finished testing and will soon begin his treatment. It is really hard to understand why one family, especially as nice and kind and thoughtful as this one, has to endure so much all at the same time. Keturah’s mother, Sarah, has truly become a wonderful friend during the last year and a half. We’ve spent many a late night chattering away on e-mail about every topic under the sun. I hope that at some time in the future our paths will cross in person so we can share a glass of wine and some expensive chocolate!

Finally, I ask that you keep baby Laura’s family in your thoughts. Baby Laura came into our lives the second day we were in the NICU at Sick Kids. There are times when you have to wait in the waiting room and can’t be in the NICU. It is really awkward to sit there with other parents. It’s hard to know what to say. That evening one of the dads struck up a conversation. Baby Laura was born pre-maturely and had severe brain hemorrhages and wasn’t likely to survive. Over the next few weeks we got to know Laura’s parents and they were truly an inspiration to us as they cared for their daughter in her last days. Parker and Laura even shared a room for a few days. On one of the few occasions that Berkeley came briefly into the NICU to see Parker, he also got to peek at a tiny, tiny Laura. He told me later that Baby Laura was so little, but so cute. I couldn’t agree more.

We’ve kept in contact with Laura’s parents and they’ve followed Parker’s story with much interest and love. Just recently, they shared that they are expecting a new addition to their family. Even though Laura is not physically with them, she is very much a part of their family. We think of Laura often and consider her to be a part of Parker’s story. Please keep Baby Laura, her mom, dad and two older brothers in your thoughts as well.

6 Responses to “On the eve of surgery . . .”

  1. 1 Rene Dereksen April 9, 2008 at 5:10 am

    HAPPY LTP DAY! I will be thinking about you all day and I can’t wait for updates! Love you guys!

    Tommys Mommy

  2. 2 Angela April 9, 2008 at 5:56 am

    I can’t beleive the day is already here.. you all will definalty be in our prayers. It has been a long journey to get here but I am soooo looking forward to seeing Parker without his Trach. I will be checking in ALL day to see how things are going and to read your updates.

    The only sad part is that once this is all over you will be leaving us, we will miss you guys very much.

    All our love and prayers are with you right now and we can’t wait for your return. Big hugs and kisses to Parker!!

    Corey, Angela, Tyler and Kyle 🙂

  3. 3 Happy April 9, 2008 at 4:22 pm

    We are praying, praying, praying for you all and for Dr. Cotton and his staff. We’ll check often to see how things are going.

    Lots of love,


  4. 4 thai checel April 9, 2008 at 7:00 pm

    We are thinking of you everyday and especially on
    Thursday!! I will be checking in and supporting you guys in a cosmic way. Take care and give Parker a big hug from his trach friends in California!!
    – thai, david and mina loy.

  5. 5 Cavelle April 10, 2008 at 12:31 am

    You will be in my thoughts all day. Love you guys take care, you have touched so many lives and I wish you the best of luck.
    Give him lot’s of hugs and kisses and I can’t wait to see you guys when you return.


  6. 6 Jennie April 10, 2008 at 1:46 am

    You are all in our thoughts and prayers. I will check in frequently. Big hugs and kisses to Parker.

    Jennie and Hannah

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