What a day! ENT came up to scope Parker. He wasn’t happy but it didn’t trigger an episode, which is huge. The vocal cords looked good so the concensus was that probably there is still some extra swelling in the lower airway and that maybe a bit of saliva or secretion caused a reaction that Parker couldn’t clear on his own- partially due to the “newness” of his airway, partially due to swelling and partially due to age and size. They don’t seem overly concerned.
He’s back on room air and they’ve let him eat a little more. He is getting pureed food and we are thickening his water to slow it down a little bit. It isn’t uncommon for there to be some sputtering and gagging with thin liquids after this surgery and it isn’t uncommon for their to be a bit of aspiration. We haven’t seen any sign of that but we are not going to take any chances. He is still getting most of his nutrients via the feeding tube. But, hopefully tomorrow that will change.
Parker did spend some time today sitting up and looking at books in his bed and right now he is resting quietly with his daddy watching “Take Home Chef” on TLC.
Hi Parker,
Glad to hear that you are feeling better.
Lots of love,
Tess, Abby and Olivia
thanks for the frequent updates, we are checking regularly, so keep us posted.
I hope things will start to turn around for Parker soon. If you need anyone to vent to or run by fears or concerns feel free to reach me. Dan and I are both here for you and Ian. Take care of yourselves.
“Take Home Chef”??? Come on, Ian, don’t they have the Disney Channel??? It’s Children’s Hospital for goodness sake!
Glad to hear he’s making progress. We are looking forward to getting to see him (and you, of course!) next week!
what a roller coaster! sounds like you guys have a good grip - glad to hear Parker is getting toward real food - that is a big step - go Parker, go!!